This is a little late and I am so sorry but I had to attend my annual shopping trip with my sisters! Before I left for my trip I took Z to see Dr. Rob. He examed him, played a few games with him and they took his blood. He told me that he felt that the worst is behind us with Z and that we would have some good news with these results.
Jason got the call that evening that Z's bloodwork was the best it had ever been. Yay!!!! He called me at the hotel to let me know. His liver and spleen were normal in size this time too...they had always been a little bit enlarged. I celebrated this weekend by drinking some wine and buying my little man some clothes. Bigger clothes.
I still wonder what was wrong with him but I don't know if we will ever know. Dr. Rob called him a "hero" and I tend to agree. I see my little man getting stronger by the day and in my heart I believe he is going to be okay.
Showing posts with label CBC. Show all posts
Showing posts with label CBC. Show all posts
Sunday, November 9, 2008
Monday, September 8, 2008
Good news...
We saw Dr. Rob today for a CBC. He called me this evening to tell me that Z's bloodwork was normal!!! He said a few numbers were a bit elevated but it appears to be normal for Z and it was nothing concerning. His monocytes were the best they have EVER been!
He was hamming it up for everyone and showing all his new tricks and getting lots of attention from the nurses and staff. He's gonna be a handful!
I must say this is the most positive I have felt about his situation in a LONG time. I think he saved it all up until he knew I was having a bad day and then he thought he'd give me some good news. :-) Little stinker. I think I will always fear that the worst is not behind us, but for now, I'm celebrating. Z is celebrating by sleeping. ha ha ha If only Jonathan would sleep...
His surgery is Wednesday and I will update after that.
Have a great evening!
He was hamming it up for everyone and showing all his new tricks and getting lots of attention from the nurses and staff. He's gonna be a handful!
I must say this is the most positive I have felt about his situation in a LONG time. I think he saved it all up until he knew I was having a bad day and then he thought he'd give me some good news. :-) Little stinker. I think I will always fear that the worst is not behind us, but for now, I'm celebrating. Z is celebrating by sleeping. ha ha ha If only Jonathan would sleep...
His surgery is Wednesday and I will update after that.
Have a great evening!
Sunday, July 13, 2008
Medical Update
It's been a while since I posted a real medical update on Zachary. We went to see Dr. Rob on Friday and everyone was amazed by his growth and his personality. He was flirting and showing off his baby blues. He was a dream. He did good on the blood draw and only cried because he had 3 women holding him down.
We discussed a few of my concerns and Dr. Rob did not brush any of my concerns off. We will now go to blood draws every 2 months. He can start his vaccines at 12 months if all CBC are normal between now and then. This one was normal. I did not ask for numbers because hearing "everything looks great" is enough for me. His lymphocytes were still high (they were in May when he had his UTI). I may ask the pedi if we can repeat his urine culture just because I want to. He was weighing in at 16 lbs.
His muscle tone looks good and we are just to keep working on sitting up with him. As long as we see improvement, then there are no worries. Dr. Rob said he has "line backer legs". LOL He asked if he was vocal and my reply was, "yes he is!". He even made his little motor boat sound for him. His newest trick he learned.
His soft spot is still a bit big but he said (same as Dr. Kate) as long as he is drooling, then not to worry when it is sunken in. It can be a sign of dehydration but b/c his is larger, it is more noticeable. He loves his solids and will now eat some yogurt, cheese, potatoes and bread. He LOVES food!
My main concern lately has been a few spots I have noticed on him. When I did my research on JMML back in January I learned that JMML kids can have Noonans or NF1 so these symptoms always remained in the back of my mind. NF1 kids have 5 or more spots called café-au-lait. Well a few weeks ago I noticed 2 of them. I also noticed a freckle. Most children do not get freckles until after 1 or maybe 2 years of age. Dr. Rob said he wants to keep an eye on these spots and if I notice more then to call him. I read that they usually appear in the first year of life and after the first summer because that is when the baby is exposed to the sun.
So for now we just watch the spots and pray that they are just spots and not linked to NF1.
I'm going to end with a request to all of you, in January I joined a support group for JMML families. The parents were all so wonderful and supportive. Unfortunately, a young baby (around Z's age) named Bobby passed away on July 10th. He is now with the Angels and free from pain. I am sure his parents would appreciate any extra prayers for them. I can't imagine their pain.
D & S, you are in my prayers and I hope you can find some peace soon.
We discussed a few of my concerns and Dr. Rob did not brush any of my concerns off. We will now go to blood draws every 2 months. He can start his vaccines at 12 months if all CBC are normal between now and then. This one was normal. I did not ask for numbers because hearing "everything looks great" is enough for me. His lymphocytes were still high (they were in May when he had his UTI). I may ask the pedi if we can repeat his urine culture just because I want to. He was weighing in at 16 lbs.
His muscle tone looks good and we are just to keep working on sitting up with him. As long as we see improvement, then there are no worries. Dr. Rob said he has "line backer legs". LOL He asked if he was vocal and my reply was, "yes he is!". He even made his little motor boat sound for him. His newest trick he learned.
His soft spot is still a bit big but he said (same as Dr. Kate) as long as he is drooling, then not to worry when it is sunken in. It can be a sign of dehydration but b/c his is larger, it is more noticeable. He loves his solids and will now eat some yogurt, cheese, potatoes and bread. He LOVES food!
My main concern lately has been a few spots I have noticed on him. When I did my research on JMML back in January I learned that JMML kids can have Noonans or NF1 so these symptoms always remained in the back of my mind. NF1 kids have 5 or more spots called café-au-lait. Well a few weeks ago I noticed 2 of them. I also noticed a freckle. Most children do not get freckles until after 1 or maybe 2 years of age. Dr. Rob said he wants to keep an eye on these spots and if I notice more then to call him. I read that they usually appear in the first year of life and after the first summer because that is when the baby is exposed to the sun.
So for now we just watch the spots and pray that they are just spots and not linked to NF1.
I'm going to end with a request to all of you, in January I joined a support group for JMML families. The parents were all so wonderful and supportive. Unfortunately, a young baby (around Z's age) named Bobby passed away on July 10th. He is now with the Angels and free from pain. I am sure his parents would appreciate any extra prayers for them. I can't imagine their pain.
D & S, you are in my prayers and I hope you can find some peace soon.
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