I can't believe that January is over! What makes it even harder to believe is that as of today, January 31st, we have not had one doctor appointment this month! Dr. Kate is probably missing us! Yes, we have PT and Speech but those are not because a child is sick so they do not count!
Zachary had an OT assessment to see if he has sensory issues. He doesn't. She gave us some ideas on things to try with him and then we will reevaluate him in 6 months. He is doing well. The boys had a stomach bug and it hit JD fast and left just as fast. It lingered with Z and it was not fun. He already has so many gagging/choking issues that I can never tell if it is the normal Z or a bug. We are working on getting him to eat crunchier/spicier foods as they tend to "wake up" the mouth. He has more choking episodes on soft foods because he has to shove his mouth full to feel the food in there. Most kids outgrow that as infants but when you have low muscle tone, it tends to take longer. We have lots of fun exercises to do with him. He does love his spicy food and will even eat Thai food and hot chips! We are working on having him look where he walks. He tends to just take off and not pay any attention to the stuff on the floor. We were told to make obstacle courses for him...thank goodness we have crap on the floor all the time so this is an easy task for us! He does stop, pick stuff up and occasionally will go into the tripod to push himself up rather than belly crawl to the table or wall. As for steps, oh dear. His short little legs make that tough. It is hard to see kids is age walking up and down steps and he can't. I know not to compare but it just makes me feel bad for him.
As for speech, he is saying a lot more words. His new favorite is "Mo", aka No. He has jumped full force into being a 2 year old and it is so much fun (rolling my eyes). He loves to hit, pinch, bite and spit...doesn't he sound lovely? Then he quickly hugs you and says he's sorry. We tried using the little insert on the toilet to see if he would go potty as he told me he wanted to, well he said "I do" when I asked, however, once in the bathroom he screamed "MO!" and grabbed the sesame street potty insert and put it in the cabinet and stomped out of the bathroom.
He is still on the Noonan's chart but on the "typical" chart his height and weight are not on the chart. He is about 32" and 25lbs. His brother however, is off the charts. Jonathan is 48" tall and 64lbs. The difference in the 2 is crazy!
Zachary will start daycare at Jonathan's school on Feb. 15th. He loves the school and all the toys. I love the school too and all the activities and learning that takes place there. Jonathan will start talking to me about the solar system, Martin Luther King, Jesus and God and I am just amazed at what he has learned. I am so very proud of the little man that my Jonathan is becoming. He is so loving and caring, sure he has his moments but he is a great kid.
The other day I learned of a baby girl that died from JMML. She was less than 1 year old and was treated by Z's doctors. I was talking to Jason about it and how lucky/blessed we were. While Z has the JMML gene, he is lucky because as we know his JMML is dormant. I have read stories of kids with JMML and kids with NS and why my little guy has been so lucky with both, is beyond a miracle. I wonder what His plans are for my little Z as the plans He has had for him over the past 2 years have been pretty amazing. My little blue eyed cutie has added so much to our family and I love how he and his brother adore each other.
