After 2 hours at the hospital, I was able to get a urine sample from Zachary. We will get the results on Monday. He hasn't ran a fever since Thursday morning so I am thinking it is just a virus.
Now for the incredible news...his bloodwork came back NORMAL! I mean every count was NORMAL! His monocytes were even normal at 6%!!! I am not sure how many months we will have to continue the testing until we get an all clear sign from the oncologist but for now, this is remarkable news!!!
Sherry, Mike and Megan, congrats to all of you! Megan is so very precious and I am so very happy for you all! ((HUGS))
Saturday, May 31, 2008
Thursday, May 29, 2008
Sherry had her baby
For all of you out there that know Sherry- I am happy to announce that she had Gummy this morning! She was born at 7:50 a.m and everything went well. Mommy and baby are doing great. Megan Elizabeth looks just like her mom. She weighed in at 7 pounds 8 ounces and is 19 3/4 inches long.
Congrats to Mike and Sherry!!!!
Congrats to Mike and Sherry!!!!
Wednesday, May 28, 2008
Fevers, runny noses and colds. Oh My!
The last three days have been filled w/snot, coughs, colds and fevers. Jonathan has a cold/cough but he is a tough kiddo and seems to be well. He also has chigger bites from our weekend in the country. Poor kid!
As for Zachary, he has had a fever since Monday. It was low grade...99-100 and then Tuesday night it spiked to 103.6! He looked awful. I freaked big time. I called the oncologist and he said to give him tylenol every 4 hrs and bring him in to him or the pedi for a CBC. The pedi could get us in at 9am and I figured she'd be less busy. Well she sent us to the lab at the hospital and they had to poke my sweet peat in each arm and two finger pricks to get his blood! UGH!!!
Anyway, ears and lungs and throat were clear. Z is weighing 14lbs and 6 oz...25th percentile! Go big guy! Physically he looked fine and had no fever at all. She said it may be a UTI but they are rare in infant boys but as we all know, Z is a rare little boy! :-) So we put a collection bag on his little, um pee pee and I figured by the time they got his blood it would be full. But I think all the squirming knocked it off and I didn't realize it until we got home. No sample and I was so exhausted I didn't call the doc. I know, bad mommy but if you would have seen the day I had!
I think I will call the ped for the CBC results and ask her for another bag and sit in her office praying the bag works so he doesn't need a catheter. Then if it is a UTI maybe we can get an RX and be on our merry way. A girl can hope right?
As for his fever, if I miss a dose of tylenol then within 6 hrs it spikes up to 101. He likes to sleep on me so it has been a very exhausting day.
Tomorrow you may see 2 posts from me...my dear friend Sherry is having a baby and asked me to update here for all her friends in blogland and then I will be sure to post an update on Z.
Sherry, Mike and Little Gummy...I am thinking of you and can't wait for that phone call in the morning to announce Gummy's safe arrival! Many prayers and lots of love to all of you!!! ((HUGS))
As for Zachary, he has had a fever since Monday. It was low grade...99-100 and then Tuesday night it spiked to 103.6! He looked awful. I freaked big time. I called the oncologist and he said to give him tylenol every 4 hrs and bring him in to him or the pedi for a CBC. The pedi could get us in at 9am and I figured she'd be less busy. Well she sent us to the lab at the hospital and they had to poke my sweet peat in each arm and two finger pricks to get his blood! UGH!!!
Anyway, ears and lungs and throat were clear. Z is weighing 14lbs and 6 oz...25th percentile! Go big guy! Physically he looked fine and had no fever at all. She said it may be a UTI but they are rare in infant boys but as we all know, Z is a rare little boy! :-) So we put a collection bag on his little, um pee pee and I figured by the time they got his blood it would be full. But I think all the squirming knocked it off and I didn't realize it until we got home. No sample and I was so exhausted I didn't call the doc. I know, bad mommy but if you would have seen the day I had!
I think I will call the ped for the CBC results and ask her for another bag and sit in her office praying the bag works so he doesn't need a catheter. Then if it is a UTI maybe we can get an RX and be on our merry way. A girl can hope right?
As for his fever, if I miss a dose of tylenol then within 6 hrs it spikes up to 101. He likes to sleep on me so it has been a very exhausting day.
Tomorrow you may see 2 posts from me...my dear friend Sherry is having a baby and asked me to update here for all her friends in blogland and then I will be sure to post an update on Z.
Sherry, Mike and Little Gummy...I am thinking of you and can't wait for that phone call in the morning to announce Gummy's safe arrival! Many prayers and lots of love to all of you!!! ((HUGS))
Monday, May 26, 2008
Happy Memorial Day
I have to be honest, I never gave much thought to Memorial Day until this year. It was really just a long weekend to kick off summer by going camping. I know it sounds heartless but it's true.
This year I offered to go to my Mom's grave w/my dad. Huge steps for both of us b/c he has never been and I am scared I will make him cry. I know it isn't me making him cry, it is missing my mom that makes him cry but still. We headed out there and my niece and nephew went with us. We bumped into my sister and BIL out there. My word, the cemetery was packed! Because Dad was in the Navy, Mom was burried at Jefferson Barracks National Cemetery. The boy scouts put flags on each grave and it is gorgeous and just amazing. There were So many people and it so amazing. The way there none of us really talked but we did talk the whole way back. It was nice.
As I left, I gave dad one of the books I made for the boys. I explained to him that it was a book with pictures of mom because I wanted my boys to always remember her or know about her. I told him to look at it if he wanted and in his own time. I want him to see it but I feel like I am reminding him of what he lost. Yet, he alreayd knows what he lost and maybe he can smile at the memories the book brings to him.
I guess I could compare it to the things Jonathan says to me. When we got to the country on Friday he says, "Oh mom is Buster here?". Little guy thought maybe we just left Buster in the country. I told him no, he was still in heaven. I smiled at his sweet innocence.
Later when I told him I was going to visit grandma's grave he asked where she was. I reminded him she was in heaven. He then asked me, "Can we go and get her?". Yes that made me cry. I told him that we could not go get her but I really wished she could. It was a hard weekend for us but with each event that our family is together, the stronger we become.
Mom you would be proud...we ate dinner before 10pm every night! :-) We all know you hated the late dinners out there, so you would be happy to know it was more like 8pm! I miss you so much.
I know it is late in the day, but I hope you all took a moment to think about the loved ones that are no longer here with you.
This year I offered to go to my Mom's grave w/my dad. Huge steps for both of us b/c he has never been and I am scared I will make him cry. I know it isn't me making him cry, it is missing my mom that makes him cry but still. We headed out there and my niece and nephew went with us. We bumped into my sister and BIL out there. My word, the cemetery was packed! Because Dad was in the Navy, Mom was burried at Jefferson Barracks National Cemetery. The boy scouts put flags on each grave and it is gorgeous and just amazing. There were So many people and it so amazing. The way there none of us really talked but we did talk the whole way back. It was nice.
As I left, I gave dad one of the books I made for the boys. I explained to him that it was a book with pictures of mom because I wanted my boys to always remember her or know about her. I told him to look at it if he wanted and in his own time. I want him to see it but I feel like I am reminding him of what he lost. Yet, he alreayd knows what he lost and maybe he can smile at the memories the book brings to him.
I guess I could compare it to the things Jonathan says to me. When we got to the country on Friday he says, "Oh mom is Buster here?". Little guy thought maybe we just left Buster in the country. I told him no, he was still in heaven. I smiled at his sweet innocence.
Later when I told him I was going to visit grandma's grave he asked where she was. I reminded him she was in heaven. He then asked me, "Can we go and get her?". Yes that made me cry. I told him that we could not go get her but I really wished she could. It was a hard weekend for us but with each event that our family is together, the stronger we become.
Mom you would be proud...we ate dinner before 10pm every night! :-) We all know you hated the late dinners out there, so you would be happy to know it was more like 8pm! I miss you so much.
I know it is late in the day, but I hope you all took a moment to think about the loved ones that are no longer here with you.
Saturday, May 17, 2008
Lovin' the bath
Don't really have much new to report here. We are just moving along. Zachary and Jonathan have the most amazing relationship that I have ever seen. It truly can bring me to tears. I have never seen a baby adore an older child as much as he has and vice versa. They just love each other so very much.
Bathtime is so much fun in our house now! Zachary sits in his tub in the big tub w/Jonathan and they just have so much fun! Z seems to sleep so much nicer on the nights he has his bath. It really wears him out...all that kicking. We should be able to remove his bandage on Tuesday. It is starting to come off on the edge but it is sticking pretty good! I think the stitches are gone now.
Now we can't wait for the pools in the summer!
Sunday, May 11, 2008
Happy Mother's Day
Mom,
I miss you terribly and wish with all my heart that you were here with us. It is rainy and cold today and that is kind of how I feel inside. God mom I miss you. Thank you mom for being the wonderful Mother that you were, thank you for fighting so hard to stay here as long as you could, thank you for watching over our family, thank you for sacrificing so much for your family and thank you for loving us with all your heart and soul. Thank you mom for being my mom.
I know one day we will meet again and until that day, you will forever be in my heart!
I love you mom and Happy Mother's day!
To all the mothers in mourning, I am thinking of you and praying for peace today.
To all the mothers that are still trying to have a child, hang in there, I know the journey is hard.
To all the mothers out there, you are very important to so many people.
May everyone enjoy their day and their family and friends.
I miss you terribly and wish with all my heart that you were here with us. It is rainy and cold today and that is kind of how I feel inside. God mom I miss you. Thank you mom for being the wonderful Mother that you were, thank you for fighting so hard to stay here as long as you could, thank you for watching over our family, thank you for sacrificing so much for your family and thank you for loving us with all your heart and soul. Thank you mom for being my mom.
I know one day we will meet again and until that day, you will forever be in my heart!
I love you mom and Happy Mother's day!
To all the mothers in mourning, I am thinking of you and praying for peace today.
To all the mothers that are still trying to have a child, hang in there, I know the journey is hard.
To all the mothers out there, you are very important to so many people.
May everyone enjoy their day and their family and friends.
Tuesday, May 6, 2008
And we're home
Today's surgery was a HUGE success! My little guy was a charmer and stole the show and was once again a star patient! He truly is a hero!
His last feeding was at 1130pm last night and I had to wake him up at 5am to leave. He was all smiles. We picked up my niece Stephanie and headed to the hospital. He slept again and as they called his name he woke up and smiled. We kept telling him it was a big day! Jonathan couldn't wait for Z to get home. He knew he was getting his boo boo out and could soon take a bath with him.
We met all the nurses and anesethia team and Z charmed them all and then slept in my arms. He had to flirt with everyone there and kept smiling at them all and Stephanie. He was so good! I told the anesthesiologist (sp?) about how last time he got real hot in the recovery room so they kept him off the heating pad this time. They took him back at 715 and we were called back at 800. Once again he was the only baby and they all wanted to cuddle him. He was crying but did great. Once we got him in the room he started charming us again. It was funny b/c I told Steph that he looked like he gained 5 pounds in there. She agreed. Not sure what it was but he looked so big! He was very happy. He ate, slept and tried to chew on his IV! LOL
He got 2 disolvable stitches and they are covered w/medical tape. He had a local there and then has had some tylenol. After 24 hrs he will get a bath! I can't believe it! We then leave the tape on for 2 weeks but if it falls off sooner, no problem.
JD was at the park w/Daddy when we got home and when they returned he said, "Let me see his tummy." and he promptly said, "Oh you can take a bath with me now". And as usual, Zachary laughed. He loves his big brother!
Today was a big day for us. We may not be out of the woods but we are going to celebrate each day. Someone told one of my sisters that this baby was here for a reason and I fully believe that. I know every child is here for a reason but Zachary is going to do something.
As for Jonathan, he is currently obsessed with peeing in his play house outside and running inside naked. Did it twice tonight and was promptly sent to bed. I think his purpose is to make me laugh. I couldn't punish him b/c he was so proud and I thought it was funny. Daddy didn't think so. Oh well, someone has to be the adult here!!
His last feeding was at 1130pm last night and I had to wake him up at 5am to leave. He was all smiles. We picked up my niece Stephanie and headed to the hospital. He slept again and as they called his name he woke up and smiled. We kept telling him it was a big day! Jonathan couldn't wait for Z to get home. He knew he was getting his boo boo out and could soon take a bath with him.
We met all the nurses and anesethia team and Z charmed them all and then slept in my arms. He had to flirt with everyone there and kept smiling at them all and Stephanie. He was so good! I told the anesthesiologist (sp?) about how last time he got real hot in the recovery room so they kept him off the heating pad this time. They took him back at 715 and we were called back at 800. Once again he was the only baby and they all wanted to cuddle him. He was crying but did great. Once we got him in the room he started charming us again. It was funny b/c I told Steph that he looked like he gained 5 pounds in there. She agreed. Not sure what it was but he looked so big! He was very happy. He ate, slept and tried to chew on his IV! LOL
He got 2 disolvable stitches and they are covered w/medical tape. He had a local there and then has had some tylenol. After 24 hrs he will get a bath! I can't believe it! We then leave the tape on for 2 weeks but if it falls off sooner, no problem.
JD was at the park w/Daddy when we got home and when they returned he said, "Let me see his tummy." and he promptly said, "Oh you can take a bath with me now". And as usual, Zachary laughed. He loves his big brother!
Today was a big day for us. We may not be out of the woods but we are going to celebrate each day. Someone told one of my sisters that this baby was here for a reason and I fully believe that. I know every child is here for a reason but Zachary is going to do something.
As for Jonathan, he is currently obsessed with peeing in his play house outside and running inside naked. Did it twice tonight and was promptly sent to bed. I think his purpose is to make me laugh. I couldn't punish him b/c he was so proud and I thought it was funny. Daddy didn't think so. Oh well, someone has to be the adult here!!
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