We are still waiting for a final test from Z's bone marrow test. They call it a "fish" test but I know it is spelled differently. This will determine if he has the chromosome for JMML and then tell us how aggressive it is. Apparently I was confused, JMML IS cancer but not as aggressive as acute lukemia. So JMML is the smoke and acute lukemia is the fire. I also got some more information cleared up and just some facts:
- Z will not be in the hospital the entire 100 days after the transplant and it should be done at Childrens here in St. louis.
- The donor of the bone marrow will be under general anesthesia and it takes about an hour.
- Z is at 7lbs and 13oz and the feeding tube is on continuous feed and cut down from 10cc's to 5cc's.
- He must be hospitalized 24 hours after last chemo shot and the last shot is on Friday.
- His white blood cell count is down from the 53k to 18k. This is great!
- Our main goal is to make sure that Z is bottle feeding and thriving on that before we can take him home.
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