Do you see something different?

NO MORE FEEDING TUBE!

That's right, it's gone! The home health nurse came out on Friday and Z weighs 8lbs and 7oz! So he gained 3oz's since Tuesday! We determined he is really only puking up about 10-15% of his feedings. So Dr. Bob said that we can try it w/o the tube. Good thing b/c the night before Z had pulled the tube out himself. What a stinker! His white cell count is at 13.1k (up from 12.6 on Tuesday) but the little man is holding his own. Red counts look fine. He has more blood work done on Monday and will hopefully receive an RSV vaccination. Tish (the nurse) feels he qualifies for it but they have to run it by the insurance company. What it does is it will boost his immune system for 30 days and help him fight off any colds that come our way...or in our case that have NEVER left! He will get a shot every 30 days until the spring. Lets' hope he is a candidate for this!

He is eating well and a bit faster. If his tummy is full of gas or he has to poop he won't eat until all that is done. He gets a little dramatic. ha ha ha!

We go on Thursday for him to have a new line put in. His central line is clogging at the end and making blood draws harder. He will be under general anesthesia and we will be at the hospital most of the day.

Jonathan is so in love with is brother. I swear Z is going to sock him in the eye one day if he doesn't stay out of his face. I know it is out of love but the boy won't leave him alone. Brotherly love huh?

Today is a good day. Now we are just taking it day by day. I have not given up on a miracle and hoping to wake up and this all be a bad dream but I also know that we have a long way to go if this truly is JMML. It is just all so confusing and for now I am thankful for the way Z is improving. He is smiling a lot more and awake a good part of the day. Now if I can capture that smile on camera.